Warmly welcome :)

Hi all!
My name is Isa, and this is my blog. A couple of months ago I was diagnosed with Buerger's Disease and I want to share my journey with You.

Blogging is very new to me, so please be patient - I will learn quickly :)

Hope you'll enjoy reading these "stories"!

2010/03/04

Tired, again.

Today, Thursday, a bad day indeed. Well, bad in the way I'm tired. So tired that I do not have the energy to do anything. Nothing. Nada. Zero. Ingenting. I just want for this day to go by, so that tomorrow would be better.

Last night it was a storm, once again. The snow has cut off our road and we get nowhere at the moment. Unfortunately the person who uses the plowtractor is lying in bed sick. So we are stuck. My daughter could not attend preschool, because of the ... snow.

Yesterday a good friend came over and told me what to do in order for me to receive disabled benefits. It looks like paperwork, tons of it. If I am to write the application having in mind my worst day, it would be something like this:
- wake up around 10.AM and start to get out of bed. My feet are so sore that I can take my first careful step about 20minutes later with the help of crutches.
- around 10.30 take a shower, carry the chair I need into the shower and another chair to sit on afterwards. After approximately half an hour later I'm done and with my last energy left I aim for my chair in the living room (=our bedroom nowadays) and sit there for hours, because me feet ache so much I don't want to stand up.
- in the afternoon my feet are a bit better and I start making dinner for my family. This can take up to three hours, because I have to sit down every few minutes when pealing the potatoes or similar.
- after dinner my feet are as sore as they were in the morning, so I have to sit again for hours to ease the pain and suddenly it is 22PM and I am about to fall asleep again.
The following day is similar, and the after that and probably weeks after that as well.

If I were to write this in the application, would they believe me?

I know the reason why I am so tired today. Things have piled up again and took the turn for the worse. Small things like the tv-channels not showing feel so overwhelming when you add ten other bigger troubles to it. Maybe it would be best if I just went back to bed and woke up tomorrow. Maybe then the road would be clear and our tv would be back on and all of the bills would be paid for?

So, good night. Sleep tight. Don't let the bed bugs bite.

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